What Is ME/CFS?​​​​

ME/CFS patients have been found to be more functionally impaired than patients with other disabling illnesses such as type 2 diabetes, congestive heart failure, hypertension, depression, multiple sclerosis, and end-stage renal disease. ME/CFS patients also have the lowest median quality of life scores of any disease tested, including lung cancer, rheumatoid arthritis, and brain stroke.

The National Institutes of Health (NIH) publishes a list annually showing its spending on various diseases. In 2015, the ME/CFS research budget, ranked in order by research dollars, was 249 out of 265 diseases funded—almost at the very bottom. And in actual dollars, government spending on ME/CFS is less than is spent on hay fever.

ME/CFS symptoms, which can often be made worse by standing upright, include

  • Extreme exhaustion
  • Non-restorative sleep
  • Concentration problems
  • Joint pain
  • Inflamed lymph nodes
  • Persistent sore throat
  • Severe headache
  • Neurological abnormalities
  • Complete organ system shutdown

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